House Proceeding 05-21-09 on May 21st, 2009 :: 0:42:35 to 0:44:45
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0:42:32 to 0:42:55( Edit History Discussion )

Bob Filner: freedom in afghanistan and iraq and close by asking god to continue to bless amera. and i yield back the balance of my time. the speaker pro tempore: mr. filner of california. the gentleman is recognized for five minutes. speaker. may is huntington's disease awareness month and rise today with my colleague from san

0:42:35 to 0:44:45( Edit History Discussion )
Speech By: Bob Filner

0:42:56 to 0:43:17( Edit History Discussion )

Bob Filner: diego, congressman bilbrayy, -- bray, in support of the americans affected by or at risk for developing huntington's disease. this disease is a degenerative brain disorder for which there is no effective treatment or cure. h.d. slowly diminishes the affected individual's ability to work, think, talk and reason. eventually, a person with h.d.

0:43:18 to 0:43:39( Edit History Discussion )

Bob Filner: becomes totally dependent upon those -- upon others for care. because it is a genetic disorder, huntington's disease profoundly affects the lives of entire families, emotionally, socially and financially. over the last few months, several families in our stand yage area affected by h.d. have contacted us a

0:43:40 to 0:44:00( Edit History Discussion )

Bob Filner: struggles they face. for example, misty lost her mother several years ago to h.d. her 40-year-old brother is now showing science of the disease. misty is also at risk for developing the condition as are her children. but if that wasn't bad enough, madam speaker, misty and her family and countless others affected by h.d. are unable to

0:44:01 to 0:44:21( Edit History Discussion )

Bob Filner: receive the medical treatment and care they need. people with huntington's disease are continually denied disability social security benefits because of outdated medical guidelines. and once people with h.d. begin to receive disability benefits, they still must wait two years before they qualify for medicare. as a result, thousands of families affected by h.d. are

0:44:22 to 0:44:42( Edit History Discussion )

Bob Filner: unable to receive the treatment and care they he desperately need -- they desperately need. many lose all they own simply trying to survive. that's why congressman bray and i have introduced h.r. 678, the huntington's disease parody act of 2009. it directs the social security

0:44:43 to 0:44:46( Edit History Discussion )

Bob Filner: administration to make it easier for people with huntington's